About the project
Norwegian whitepapers encourage municipalities to involve user representatives in devising primary care services. Such collaborative processes are prerequisite in health service development and strengthening involvement within health-care is supported by international and Norwegian long-term policy goals. Still, this is not a common practice.
Challenges that collaborating health professionals and user representatives face may in part explain why. Differing understandings and practices of involvement and power issues in the collaborative processes have for example been identified. Also, health care professionals in Norwegian municipalities say they do not know how to do user involvement. This may weaken the practice of user involvement and possibilities for different groups in the population to voice their needs.
Our literary review on research on patient participation in health service development reveals limited research on approaches to involvement, of contextual aspects that support involvement, and of its impact. The main objective of this study is to investigate and describe how user representatives and professionals can collaborate constructively to develop primary care services, and potential impact of such a collaborative process.
The study has a descriptive, explorative, qualitative and participatory design. It is carried out in partnership and co-researching with a co-researcher with experience, user representatives, professionals and researchers. The data generation relies on a field study, focus group and individual interviews with user representatives and professionals affiliated with municipalities´ development of primary care services. We draw on theoretical frameworks comprising user involvement and patient and public participation as well as professional, value-based practice.
The study will contribute to an in-depth understanding of aspects that inflict on collaborative processes between user representatives and professionals in health service development. The results will be relevant to user representatives, health care professionals, administrative staff in user and health organizations, staff in educational institutions, and users of health services and their next of kin.
The project is financed by ExtraStiftelsen. The Norwegian Federation of Organizations of Disabled People (FFO) is a main collaborator. It is registered with the Data Protection Official at Oslo University Hospital and is expected to be finalized at the end of 2021.
Master in health siences
CHAPAR – Challenges of participation